| 袁梦雪.国内外健康医学科学数据管理平台对比分析[J].数字图书馆论坛,2020,(1):11~19 |
| 国内外健康医学科学数据管理平台对比分析 |
| Comparative Analysis of Health Medical Scientific Data Management Platforms from Domestic and Abroad |
| 投稿时间：2019-12-26 |
| DOI：10.3772/j.issn.1673-2286.2020.01.002 |
| 中文关键词: 健康医学；科学数据管理；数据共享；健康医学科学数据管理平台 |
| 英文关键词: Health Medicine; Scientific Data Management; Data Sharing; Health Medical Scientific Data Management Platforms |
| 基金项目: |
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| 摘要点击次数: 2408 |
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| 中文摘要: |
| 基于科学数据管理生命周期理论与科学数据管理能力成熟度模型，从建设基础（政策、经费、技术、团队）及管理过程（数据管理计划、采集标准与流程、描述与元数据、存储与保存、共享与保护、应用与服务）两个维度对比国内外11个健康医学科学数据管理平台的建设实践。调查发现，国内健康医学科学数据管理政策不够完善，缺少保障健康医学数据安全及个人隐私的法规；平台提供的服务强调健康医学科学数据存储，而对数据管理与共享的支持不足。基于国外成熟经验，本文从完善激励机制与数据政策、扩大经费来源、增强技术创新、保护数据安全和促进数据共享、深化服务内容5个方面对国内健康医学科学数据管理平台提出建议。 |
| 英文摘要: |
| Based on the scientific data management life cycle theory and the scientific data management capability maturity model, we compare the construction practices of 11 health medical scientific data management platforms from two dimensions of the construction foundation (policy, funding, technology, organization) and management process (data management plan, collection and evaluation, description and metadata, storage and preservation, sharing and protection, applications and services). The survey found that domestic health medical scientific data management policies are inadequate, lacking regulations to protect the health medical data security and personal privacy, and that the services provided by the platform emphasize the storage of health medical scientific data, lacking attention to data management and sharing. According to abroad experience, this article proposes domestic health medical scientific data management platforms from five aspects: improving incentives and data policies, expanding funding sources, enhancing technological innovation, protecting data security and promoting data sharing, and deepening service content. |
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